Founder’s Award


Dr. Denise Adams, Recipient of the LGDA’s Founder’s Award

Jack Kelly presents the LGDA Founder’s Award to Dr. Denise Adams

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) is pleased to announce that it made its 2nd Founder’s Award to Denise Adams, MD, Professor, UC Department of Pediatrics, Fellowship Director, Division of Hematology/Oncology, Medical Director, Comprehensive Hemangioma and Vascular Malformation Clinic, Cincinnati Children’s Hospital Medical Center.

Jack Kelly, president of the LGDA, presented the award to Dr. Adams at a meeting at Cincinnati Children’s of a group of vascular anomalies/lymphatic malformations and rare disease patient advocacy entities and foundations. Attending the presentation were members of Dr. Adams’ staff; Dr. John Perentesis, MD, Director, Division of Oncology, Cincinnati Children’s Hospital Medical Center; and Beth Mantey, LGDA Director of Patient Support.

Dr. Adams was selected as the recipient of the LGDA’s highest recognition award for extraordinary medical professionalism, patient caring, human kindness, and leadership extended to the rare disease group of lymphatic malformations known as lymphangiomatosis & Gorham’s disease. Dr. Adams, a founding member of the LGDA Medical Advisory Council, is deeply committed to the care of children afflicted with these diseases, as demonstrated by her involvement in so many cases around the world, her leadership in a Consensus Meeting to characterize and define the diseases, and her role as principal investigator of the first-ever Clinical Trial known to include our patient community.

We are eternally grateful to Dr. Adams for her willingness to help our orphan-disease community, and look forward to new areas of clinical research which can improve the lives of all afflicted with these two catastrophic diseases which are thought to be very closely related.

The Founder’s Award was created by our late Founder, Jana K. Sheets, to recognize extraordinary efforts directed at improving the well-being of our worldwide patient community.

Jack Kelly - Dr. Adams - Dr. Perentesis

Jack Kelly – Dr. Adams – Dr. Perentesis