Walk for Lymphangiomatosis
When their son Ethan was diagnosed with lymphangiomatosis in October 2009 at age 7 months, Nick and Kelly Moss were devastated. Once the shock wore off, they decided they had to do something to help their son and others living with this disease. On July 24, 2011, Nick set out on a 1500-mile military style walk across the United Kingdom to raise money and awareness.
The walk will take 6 weeks to complete, during which time Nick will be living out of a 50lb Burgan (a type of back pack), eating ration packs and camping. Kelly and their children—7 in all—will join Nick for some parts of the journey doing fundraising and publicity. In addition to raising awareness about lymphangiomatosis, they are trying to raise enough money to bring Ethan (the 6th of their 7 children) to the United States for evaluation and possible treatment.