Illinois Pre-Teens Raise over $3,000 for LGDA


On behalf of the entire community of patients around the world, the LGDA would like to express a GINORMOUS THANK YOU to two young ladies in Illinois who organized a neighborhood fundraising event in support of the Alliance.

Madeline’s 9-year old brother Zachary was diagnosed with lymphangiomatosis when he was three.  Madeline has always been so proud of her brother’s strength and determination in dealing with his condition. Wanting to do something to try to help her younger brother, she talked with her close pal, Elle. Together they came up with an idea to raise money that they would donate to the LGDA, which Madeline calls “Zac’s Charity.” The girls decided to host a fashion show to raise awareness about Zachary’s disease and money to help LGDA in its mission to provide patient support and promote research programs to develop effective therapies to improve the well being of patients like Zachary.

Madeline and Elle started planning the show in late December 2009 and spent many months making necklaces, bracelets, tie-dyed scarves, belts, and other trinkets to sell at the fashion show fundraiser. Madeline’s parents recently hosted the event at their home in Barrington, IL. It was a great success, with more than 50 people attending.

Madeline and her friend Elle, who acted as co-chair of the event, eagerly counted the money and called the president of the LGDA to announce they had raised $3,385!

These young ladies truly are an inspiration! The LGD Alliance extends to them its heartfelt thanks and congratulations on a job well done. We also extend our sincerest thanks to those who attended this fundraiser for their generous contributions, which go to support the mission of the LGDA.