Rare Diseases Day 2011


UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE AT SHANDS HOSPITAL SPONSORS RARE DISEASES DAY EVENT

2/25/2011

The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) and the University of Florida College of Medicine & Shands Hospital, Gainesville, FL, and UF ‘s Orthopaedic & Sports Medicine Institute, are having an all day exhibit and information booth on rare bone diseases, including bone tumors, on February 28th.  The exhibit will be held in the grand atrium of the hospital to commemorate the 4th worldwide Rare Diseases Day co-led by the National Organization of Rare Disorders  (NORD) and the European Organization of Rare Diseases (EURORDIS)

John D. Reith, MD, Clinical  Professor & Director of Bone and Soft Tissue Pathology, UF–Shands, and Jack Kelly, President, LGDA will be hosting the exhibit.  The LGDA  is a member of the Rare Bone Disease Network, a consortium of 8 rare musculoskeletal diseases, and the American Thoracic Society Council of Public Representatives for rare lung disorders. Dr. Reith is a founding member of the LGDA Medical Advisory Council.

Florida Governor Rick Scott issued a proclamation declaring February 28, 2011, Rare Diseases Day throughout the state.  There are more than 6000 rare diseases affecting more than 25 Million people in the U.S.