Up-to-date information on the activities of the LGDA, as well as news and events of interest to patients and professionals.     Older News and Event Topics On your marks, get set, go . . . On your marks, get set, go . . . Register NOW for 1st LGDA Patient & Family Conference – […]


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Educating patients, their families, healthcare professionals, and policymakers is at the core of our mission to improve patient care.

Ways to Give

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Everything the LGDA does is made possible by the efforts of generous individuals who believe in our mission.

Coming Events


September 2015

Monday - Friday, September 7 - 11 - World Congress of Lymphology - San Francisco

Saturday, September 19 - LGDA Annual Fundraising - Wisconsin Golf Tournament - Brown Deer, Wisconsin

Tuesday & Wednesday, September 29-30 - NIH Symposium - Lymphatics: the Third Circulation As Regulators in Health and Disease

October 2015

Tuesday - Thursday, October 6 - 8 - PCORI Annual Meeting - Arlington, Virginia

Friday - Monday, October 9 - 12 - American Society Bone and Mineral Research - International Conference -
Seattle, Washington

October 21-22 - NORD Annual Meeting - Arlington, Virginia

Previous Events

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    Rare Lung Disease Week II – View Recorded Webinar

      As part of “Rare Lung Disease Week at the ATS” and in conjunction with PAR partner the Lymphangiomtosis & Gorham’s Disease Alliance, the ATS PAR presented a live webinar on Wednesday, August 5, 2015. If you were unable to join the webinar, it was recorded and can be viewed by clicking here. The topic […]

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    Alcoa Pittsburgh Takes a Walk with Ella

    On October 27, 2014, employees at Alcoa’s Pittsburgh office joined together and walked 1-mile around the North Shore as part of the “Take a walk with Ella” fundraiser.

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    Warrior Alfie Starts to School

    Alfie Milne’s parents, Mark and Tracy Milne, generously shared his story on our website earlier this year. At the time Alfie had been on Rapamune/sirolimus for a few months and had just received his walking frame. Now, Alfie has been on the drug for almost a year, since September 2011, and is doing remarkably well. […]

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Support Information

LGDA is here to help you find resources and to provide support to patients and families living with lymphangiomatosis & Gorham's disease. If you need help,

Contact Us

LGD Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (844) 588-5771 (toll free)

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