2019 MDBR Pilot Grant Program – Now accepting LOI applications

Team LGDA/LMI co-captain Scot Wiesner crosses the Schuylkill River in Philadelphia during the 2019 MDBR.

The LGDA and LMI are pleased to announce a funding opportunity for research that will advance the understanding of GLA, GSD, KLA.

Among the available research opportunities being offered by the Orphan Disease Center is a one-year grant of $62,861.00. This grant amount is the result of the efforts of the LGDA and its research partner, the Lymphatic Malformation Institute (LMI), through their participation in the 2019 Million Dollar Bike Ride.

Deadline for submitting LOI is Monday, September 23, 2019. Eligibility and submission instructions can be found on the ODC website.

The LGDA and LMI extend our deepest gratitude to all those who supported our team this year and every year!

Advocacy Network for Vascular Anomalies Formed

The LGDA and Klippel-Trenaunay Support Group have joined together to form the Advocacy Network for Vascular Anomalies (ANVA). Through this new effort ANVA member organizations will present a unified voice for all vascular anomalies patients to facilitate collaboration among clinical and research networks.  Advocacy organizations for vascular anomalies patients interested in joining ANVA may contact us for more information.

Featured News & Events

Warriors in the News

Supporting the Mission

All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.

Events to Support Our Mission

Rennie Family Fundraiser

We thank the Rennie family for their continuing support of the LGDA through their annual golf outing in honor of their son and brother, Matt Rennie. This year's event raised $2500.00 (US) that will benefit LGDA programs! ...
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2019 MDBR Brings in Over $60K for Research

We want to thank Team LGDA & LMI and all of you who supported them in the 2019 Million Dollar Bike Ride. Including matching funds, the event raised more than $60,000.00 that will go to important research of GLA, GSD, KLA, and CCLA! UPDATE: On August 22, 2019 the Orphan ...
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2019 Million Dollar Bike Ride

It's time again for the Million Dollar Bike Ride! Now in its sixth year, this effort from our community has directly funded 10 research projects focused on our rare lymphatic diseases. In addition, the requests for proposals for research have identified other worthy projects that LGDA & LMI have funded ...
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LGDA Comedy Night

The LGDA Wisconsin group is holding its eighth annual fundraiser, this time a professional improv comedy night by ComedySportz Milwaukee. Wisconsin events have raised more than $130,000 for the LGDA so far. For more information or to sign up, visit http://weblink.donorperfect.com/ComedySportz2018. See the LGDA Wisconsin Facebook page here: https://www.facebook.com/lgdagolfouting/ Register now for ...
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Birthday Party Raises $5000

On July 29, 2018, the family of Adrian Santos hosted its second party to celebrate his 4th birthday and raise awareness about kaposiform lymphangiomatosis (KLA) and money for the LGDA to support research efforts. Once again, Adrian's great aunt Linda Sutherland organized the event. Activities for the kids included face ...
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2 Fundraisers in Dordrecht, the Netherlands for #LGDAwareness Day 2018

Cruising for Ella One of the fundraising events taking place for #LGDAwareness Day is Cruising for Ella on May 25th. This is a spectaculair experience from the water while watching old steam ships come by. Dinner and drinks included! Register: varenvoorella@gmail.com. Live for Ella Three bands from the Netherlands will ...
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Where are the Patients?

The pins on the map represent the state or province where at least one patient known to the LGDA lives; more than one patient may live in the state or province marked by a pin. Zoom in and drag the map around to view more details.