Through our news page we keep you up-to-date on the activities of the LGDA, as well as news and events of interest to our community. You also will find links to our blog and our archived e-newsletters.  


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Education is the thread that links all the goals of the LGDA and is at the core of our mission to improve patient care by promoting research that will identify effective treatments and a cure for these diseases. Our mission centers on educating patients and their families, the professionals involved in their diagnosis and treatment, […]

Ways to Give

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Volunteers and private donations are the life-blood of the LGDA. Everything we do and every dollar raised to do those things is made possible by the efforts of generous individuals who believe in our mission. There are many things you can do to help support the mission of the LGDA.

Coming Events & Top Stories


ATS-PAR Meet the Expert – San Diego
May  2015

Thursday & Friday, May 1 – 2 – Controversies in Vascular Anomalies – New York Academy of Sciences – New York City

Tuesday – Friday, May 5 – 9 – American Society of Pediatric Hematology/Oncology – Vascular Anomalies Group – Phoenix

Saturday, May 9 – Support Team LGDA in Million Dollar Bike Ride – Philadelphia

Saturday, May 16 – American Thoracic Society – International Conference Meet the Experts – Timothy Vece, MD – Denver

September 2015

Monday – Friday, September 7 – 11 – World Congress of Lymphology – San Francisco

Saturday, September 19 – LGDA Annual Fundraising – Wisconsin Golf Tournament – Brown Deer, Wisconsin

Previous Events

  • Walk With Ella 1

    Alcoa Pittsburgh Takes a Walk with Ella

    On October 27, 2014, employees at Alcoa’s Pittsburgh office joined together and walked 1-mile around the North Shore as part of the “Take a walk with Ella” fundraiser. The walk started at the Pittsburgh Office, 201 Isabella Street, Pittsburgh, PA. The goal of this event was to increase public awareness and to raise money to […]

  • RunBalmoralAlfie'sSchoolFriends-small

    On your marks, get set, go . . .

    200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust   On 27th of April 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.  Following last year’s success when over 60 runners took part in the Balmoral road races (,) in support […]

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Support Information

LGD Alliance is here to help you find resources and to provide support to patients and families living with lymphangiomatosis & Gorham's disease. If you need help, please

Contact Us

LGD Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (844) 588-5771 (toll free)

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