Monday, February 29 - Rare Disease Day
Wednesday - Thursday, March 16 - 17 - ATS Hill Day - Washington, DC
April 21- 22 - World Orphan Drug Congress - Washington, DC
Up-to-date information on the activities of the LGDA, as well as news and events of interest to patients and professionals. Older News and Event Topics On your marks, get set, go . . . On your marks, get set, go . . . Register NOW for 1st LGDA Patient & Family Conference – […]
Educating patients, their families, healthcare professionals, and policymakers is at the core of our mission to improve patient care.
Everything the LGDA does is made possible by the efforts of generous individuals who believe in our mission.
As part of “Rare Lung Disease Week at the ATS” and in conjunction with PAR partner the Lymphangiomtosis & Gorham’s Disease Alliance, the ATS PAR presented a live webinar on Wednesday, August 5, 2015. If you were unable to join the webinar, it was recorded and can be viewed by clicking here. The topic […]
On October 27, 2014, employees at Alcoa’s Pittsburgh office joined together and walked 1-mile around the North Shore as part of the “Take a walk with Ella” fundraiser.