Rare Disease Week on Capitol Hill (February 25 – 28, 2020) brings rare disease community members from across the United States together to be educated
2019 MDBR Pilot Grant Program – Now accepting LOI applications
The LGDA and LMI are pleased to announce a funding opportunity for research that will advance the understanding of GLA, GSD, KLA.
Among the available research opportunities being offered by the Orphan Disease Center is a one-year grant of $62,861.00. This grant amount is the result of the efforts of the LGDA and its research partner, the Lymphatic Malformation Institute (LMI), through their participation in the 2019 Million Dollar Bike Ride.
Deadline for submitting LOI is Monday, September 23, 2019. Eligibility and submission instructions can be found on the ODC website.
The LGDA and LMI extend our deepest gratitude to all those who supported our team this year and every year!
Advocacy Network for Vascular Anomalies Formed
The LGDA and Klippel-Trenaunay Support Group have joined together to form the Advocacy Network for Vascular Anomalies (ANVA). Through this new effort ANVA member organizations will present a unified voice for all vascular anomalies patients to facilitate collaboration among clinical and research networks. Advocacy organizations for vascular anomalies patients interested in joining ANVA may contact us for more information.
Featured News & Events
Warriors in the News
Finding the LGDA was a lifeline for Tracy and her family ‘Feeling that you belong somewhere – helps. Knowing that you can talk to someone
All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.
Events to Support Our Mission