It’s time again for the Million Dollar Bike Ride! Now in its sixth year, this effort from our community has directly funded 10 research projects
We Heard You!
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults with these conditions. We are working on recruiting adult providers but we need hard data from patients to help define where clinical resources are lacking.
We have developed a survey to gather your experiences as an adult patient. The results will be analyzed and published and will help patients with vascular anomalies in the years to come.
If you are a patient 18 years of age or older, please help us gather information by completing this survey. Click here to begin.
Participation is voluntary and is anonymous.
Featured News & Events
Warriors in the News
Finding the LGDA was a lifeline for Tracy and her family ‘Feeling that you belong somewhere – helps. Knowing that you can talk to someone
All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.
Events to Support Our Mission