It’s time again for the Million Dollar Bike Ride! Now in its sixth year, this effort from our community has directly funded 10 research projects
We Heard You!
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults with these conditions. We are working on recruiting adult providers but we need hard data from patients to help define where clinical resources are lacking.
We developed a survey to gather the experiences of adult patients and collected responses over a period of six months in 2019. Preliminary data compilation has been completed and submitted for consideration of presentation as a poster at an upcoming medical conference in the United States.
Many thanks go to those who took time to complete the anonymous survey. Stay tuned for more developments!
Featured News & Events
Warriors in the News
Finding the LGDA was a lifeline for Tracy and her family ‘Feeling that you belong somewhere – helps. Knowing that you can talk to someone
All over the world, Warriors and the people who care about them make great efforts through fundraisers and awareness events to support the LGDA’s mission.
Events to Support Our Mission