Foundation News


Up-to-date information on the activities of the Lymphangiomatosis & Gorham’s Disease Alliance, as well as news and events of interest to patients and professionals.     Older News and Event Topics On your marks, get set, go . . . On your marks, get set, go . . . Register NOW for 1st LGDA Patient […]


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Educating patients, their families, healthcare professionals, and policymakers is at the core of our mission to improve patient care.

Ways to Give

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Everything the LGDA does is made possible by the efforts of generous individuals who believe in our mission.

Coming Events


June 2016

June 10 & 11 – 2nd International Conference on Generalized Lymphatic Anomaly & Gorham-Stout Disease – Atlanta, GA


July 2016

LGDA Patient Registry

  • Golf Outing Tops $100,000 Mark

    By Scot Wiesner & Beth, Ryan and Claire Mantey After 5 years of being a part of the LGD Alliance Golf Outing in Wisconsin as an organizer and enjoying the camaraderie of everything it has become, we are proud to say that we are well over $100,000 in funds raised for the LGD Alliance. This […]

  • Diagnosis chart

    Snapshots of the Data

      Since the International LGDA Registry for Lymphatic Malformations (LGDA Registry) first went online nearly 200 patients living on 6 continents have joined. The charts in this post highlight some of what we’ve learned so far about these participants’ diagnoses; what percentage have disease in the chest, bones, abdomen, pelvis and skin; and how many […]

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LGDA is here to help you find resources and to provide support to patients and families living with lymphangiomatosis & Gorham's disease. If you need help,

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LGD Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (844) 588-5771 (toll free)

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