Up-to-date information on the activities of the Lymphangiomatosis & Gorham’s Disease Alliance, as well as news and events of interest to patients and professionals.     Older News and Event Topics On your marks, get set, go . . . On your marks, get set, go . . . Register NOW for 1st LGDA Patient […]


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Educating patients, their families, healthcare professionals, and policymakers is at the core of our mission to improve patient care.

Ways to Give

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Everything the LGDA does is made possible by the efforts of generous individuals who believe in our mission.

Coming Events


April 2016

April 21- 22 - World Orphan Drug Congress - Washington, DC


May 2016

Saturday, May 7 - Million Dollar Bike Ride - Philadelphia, PA

May 11-14, 2016 -  American Society of Pediatric Hematology-Oncology's 29th Annual Meeting - Minneapolis, MN

Friday, May 13 - LGDA Golf Outing - Green Bay, Wisconsin

May 13 - 18 - American Thoracic Society International Conference - San Fransisco, California

June 2016

Saturday, June 10 - UK Patient Update Day - London

LGDA Patient Registry

  • Diagnosis chart

    Snapshots of the Data

      Since the International LGDA Registry for Lymphatic Malformations (LGDA Registry) first went online nearly 200 patients living on 6 continents have joined. The charts in this post highlight some of what we’ve learned so far about these participants’ diagnoses; what percentage have disease in the chest, bones, abdomen, pelvis and skin; and how many […]

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Support Information

LGDA is here to help you find resources and to provide support to patients and families living with lymphangiomatosis & Gorham's disease. If you need help,

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LGD Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (844) 588-5771 (toll free)

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