Reaching for the Cure

There is no medicine like hope, no incentive so great, and no tonic so powerful as the expectation of something better tomorrow.

- Orison Marden

 
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Hansel
“I grew up playing with my brother and sisters without any trouble until 1997, when I was 9 years old and suffered a fracture on my left leg”
Ricardo
“It is getting easier to fight this battle with the help of www.lgdalliance.org and of course www.gorhams.dk, www.gorhams.org, and all the other people around the world that are working hard to create awareness about this disease.

Leyton
“We were glad to have a diagnosis until we researched it and found that it’s so rare and that most of the information that we read was not very encouraging. Plus most of the doctors hadn’t even ever heard of the disease….that was the scariest part”.

Claire
“I will continue to pray for a medical champion to lead us in research, education and to direct us toward a cure.”

Jack
“. . It soon came to surface that I may in fact have this really rare and pretty much unheard of condition called Gorham’s disease”. This was rather worrying, at first, since a definite “cure” of a “magic pill” to make it go away does not exist”.

 

 

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LGD Alliance - Europe

Contact Us

Need more Information? The LGD Alliance welcomes any questions or comments you might have. We look forward to talking with you.

Lymphangiomatosis & Gorham's Disease Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (561) 441-9766

Email: info@lgdalliance.org
Patient Support: support@lgdalliance.org