Nick Moss

Walk for Lymphangiomatosis

  When their son Ethan was diagnosed with lymphangiomatosis in October 2009 at age 7 months, Nick and Kelly Moss were devastated. Once the shock wore off, they decided they had to do something to help their son and others living with this disease. On July 24, 2011, Nick set out on a 1500-mile military [...]

CaringBridge American Thoracic Society National Organization for Rare Disorders
LGD Alliance - Europe

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Need more Information? The LGD Alliance welcomes any questions or comments you might have. We look forward to talking with you.

Lymphangiomatosis & Gorham's Disease Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (561) 441-9766

Email: info@lgdalliance.org
Patient Support: support@lgdalliance.org