You’re Invited! ATS-PAR Patient-Family Forum
As a member of the American Thoracic Society Public Advisory Roundtable, the LGDA is pleased to invite you to participate in the Patient-and-Family Forum, Saturday, May 19, 2012, during the International Conference of the American Thoracic Society at the Marriott Marquis in San Francisco, CA. For the first time lymphangiomatosis and Gorham’s disease will be [...]
Paper . . . Paper . . . Paper . . .
How often have you found yourself sitting in a waiting room with a clipboard balanced on your lap trying to put complete answers in too small a space, all the while worrying that you’ll leave out something important? All doctors and hospitals ask for much of the same information at your initial visit or when [...]
CaringBridge
The LGD Alliance is a proud CaringBridge Partner. Many members of our community have created a free CaringBridge page to help them keep in touch with friends and family as they deal with the challenges of living with lymphangiomatosis and Gorham’s disease. CaringBridge’s free websites offer a personal and private space to communicate and show [...]
Keeping Track of Medical Records
How many doctors do you have? Two? Three? Ten? Do you ever wonder if they all talk to each other? If any of them ever communicate with one another? You may be shocked by the answer. A study published in The Archives of Internal Medicine in January 2011 found that 69% of Primary Care Physicians [...]
