Helpful Links
Related Organizations
- A.F.A.S
- Angiome
- Angiomi
- Genetic Alliance
- National Organization for Rare Disorders
- National Organization of Vascular Anomalies
- Rare Bone Disease Patient Network
- The International Society for the Study of Vascular Anomalies
Research & Treatment
- Clinical Trials.gov
- Clinical Trials Listing Service
- Lymphatic Research Foundation
- Rare Lung Disease Consortium
Scientific Journals
- American Journal of Respiratory and Critical Care Medicine
- American Journal of Roentgenology
- Annals of Thoracic Surgery
- CHEST
- Journal of Pediatrics
- Radiology
- Spine
- The Journal of Bone and Joint Surgery
- The Journal of Pediatric Surgery
Professional and Medical Societies
- American Academy of Orthopedic Surgeons
- American Society for Bone & Mineral Research
- American Thoracic Society
- United States Bone and Joint Decade
- Musculoskeletal Tumor Society
- American College of Chest Physicians
- The Cardiothoracic Surgery Network
- American Lung Association®
- Armed Forces Institute of Pathology
- Pulmonary Pathology Society
- American Pediatric Society – Society for Pediatric Research
- American Academy of Pediatrics
- The American Society of Lymphology
Government Agencies
- National Institute of Health
- National Institute of Arthritis and Musculolskeletal and Skin Disease (NIAMS)
- National Heart, Lung, and Blood Institute (NHLBI)
- National Office of Rare Diseases
- Pubmed
Other Helpful Websites
- 2nd Wind
- Caringbridge®
- Changing Faces®
- National Association of Children’s Hospitals & Related Institutions
- Family Care America
- Angel Flight America®
- Make-A-Wish Foundation®
- Madisons Foundation
- Radiology for Patients
- Ronald McDonald House Charities®
