Surgery

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SharonJ

Posted 5/29/2008 5:30:25 PM

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Last Login: 5/30/2008 12:35:36 PM
Posts: 2, Visits: 4

Hi,

We found out my daughter has lymangiomatosis about 7 years ago. She is now 17 almost 18 years old. The doctors now want to perform surgery on her spine due to the fact that her curvature is at 70% and the tension on her spinal cord is too tight. Has anyone gone through or known anyone who has gone through spine surgery where they actually attached rods to the spine with the condition of lymphangiomatosis? What the doctors are trying to do is to keep the screws that connect the rods to the bone intact. Because of the softness or porous bone they are afraid the screws will not hold. Any information will be helpful. Her surgery is scheduled for June 23, 2008.

Thank you,
Sharon

Post #58

Jack Kelly

Posted 5/30/2008 6:11:43 AM

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Group: Administrators
Last Login: 10/25/2008 10:10:41 PM
Posts: 16, Visits: 96

Hello Sharon, and welcome to the Forum.

I don't know if this is directly relevant, but perhaps your daughter's medical team will be able to discern whether they would want to contact the doctors involved in the new technique utilizing titanium implants. I will send you an article entitled Bionic Bone by Gillian Warren-Brown about how Dr.'s George Vicatos and Keith Hosking in South Africa applied this engineering and surgical technique to a Gorham's disease patient in 2003.

Jack Kelly

Post #59

Ryan'smom

Posted 5/31/2008 7:27:20 AM

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Last Login: 6/8/2008 1:43:45 PM
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My son Ryan had surgery in Dec 2007. He had 2 collapsed vertabrae in his neck. Our neurosurgeon removed the damaged vertabrae and replaced it with donor bone and screws. He was able to put a type of "cement" around the plate and screws to secure them. He has recovered very well and is pain free and has regained movement in his neck. He also has a curvature of the spine, but at this point it does not require additional surgery.

Amy

Post #69

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