InstantForum.NET v4.1.4Lymphangiomatosis & Gorham's Disease Alliance Forumhttp://www.lgdalliance.org/forums/forum@lgdalliance.orgTue, 06 Jan 2009 16:36:05 GMT20http://www.lgdalliance.org/forums/Topic103-23-1.aspxYes she does, see the post under headaches for more details.Wed, 13 Aug 2008 10:48:31 GMTBeth Mhttp://www.lgdalliance.org/forums/Topic103-23-1.aspxBeth,Does your daughter has headache? My daughter stayed in hospital for 3.5 weeks because of severe headache and vomiting. She also had double visions and noise in her ears. She has Gorhma's disease, but I don't think they are related. The MRI/CT/MRV on her brain are all normal. The doctor did LP on her, and it turned out to be pseudotumor cerebri. It is under control now.-CindyThu, 24 Jul 2008 13:01:30 GMTCindy Weihttp://www.lgdalliance.org/forums/Topic103-23-1.aspxClaire has profound hearing loss in her left ear (her skull and left side of the face are involved). We were just informed that her eye pressure on the left side was high at her last eye appointment. The doctor's don't seem to know if this is Lymphangiomatosis related or not. She also needed glasses for near sightedness but were the same on both sides. Her left eye does appear to slightly 'bulge" as does much of her left side of her face. Has anyone else had vision or hear issues, especially increased eye pressure due to the Lymphangiomatosis?Tue, 24 Jun 2008 22:25:15 GMTBeth M