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Forum Newbie
Group: Forum Members
Last Login: 6/23/2008 6:00:13 AM
Posts: 6, Visits: 9 |
| My name is Kristen and I just wanted to stop in and introduce myself. My 7 year old daughter has Atypical Gorhams Disease. I am looking forward to being apart of this site and meeting new people in similar situations.
Proud Mom of a strong little girl living with Gorham's Disease |
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| | | Junior Member
Group: Administrators
Last Login: 10/25/2008 10:10:41 PM
Posts: 16, Visits: 96 |
| On behalf of the community of patients and families with children that have lymphangiomatosis or Gorham's disease, I extend a warm greeting and welcome to you, Kristen. While we are glad that you have joined the Forum, we certainly are not happy to hear that your daughter has received a diagnosis of Atypical Gorham's Disease. You are not alone. You have come to the place where we believe you will find camaraderie and where patient & family support is job one.
We extend our prayers and good wishes for your child's good health.
Warmly,
Jack Kelly |
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Forum Newbie
Group: Forum Members
Last Login: 6/23/2008 6:00:13 AM
Posts: 6, Visits: 9 |
| Thank you very much, it is a great relief just knowing that we are not alone!!!!!
Proud Mom of a strong little girl living with Gorham's Disease |
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| | | Forum Newbie
Group: Forum Members
Last Login: 12/27/2008 7:13:22 PM
Posts: 9, Visits: 42 |
| Hi. My name is Rhonda and my daughter Robin's story or at least a brief part of it is under patient info. Hello and welcome. Blessedmom
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