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| | | Junior Member
 
Group: Administrators
Last Login: 10/25/2008 10:10:41 PM
Posts: 16, Visits: 96 |
| To the worldwide community of lymphangiomatosis & Gorham's disease patients, families, friends, medical professionals, generous and caring donors, and all others interested in our cause, I would like to welcome you who come this way to visit our new Forum. Please visit whenever you have a question for which you need an answer; when you wish to follow a particular subject of interest; when you have information you think will be helpful to someone else's question; if you have an experience you wish to share, or, if you have any item of general interest to our community. Let the knowledge go forth!
On this occasion of our opening of the Discussion Forum please be aware of the rules of the road which I include again below.I would sincerely like to thank Sandy Goldfarb, VP, and Jana Sheets, Founder of the LGD Alliance, for all their very diligent effort which has produced this outstanding Forum. And, I would also like to thank our very fine developer, Gate39Media, for their excellent performance.
This is a safe, secure, and supportive environment where you can meet friends, ask questions, and share stories with others affected by lymphangiomatosis & Gorham's disease. We hope you'll enjoy the time you spend here.
Forum Guidelines
1. Forum participants should not post messages containing offensive
language, advertising, or solicitations.
2. If you would like to be able to post messages, you must first register.
3. The LGD Alliance reserves the right to edit, remove, or refuse
any postings which are deemed to be inappropriate.
4. All discussions and postings are divided into categories in order
to better help new users navigate. Please be sure to try to post
in the appropriate section.
5. The LGD Alliance will monitor this forum and its content and
provide technical assistance to users when necessary.
6. The LGD Alliance does not endorse or make warranties with
regard to the accuracy of any statements made on the Forum.
Please let us know if you have any questions, comments, or suggestions.
Sincerely,
Jack Kelly, President
LGD Alliance |
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| | | Junior Member
Group: Forum Members
Last Login: 10/26/2008 6:04:21 PM
Posts: 11, Visits: 25 |
| Dear Mr. Kelly,
THANK YOU to you and the Alliance for offering this forum. We have a newly diagnosed daughter and have found it difficult to reach others whose family members are dealing with similar situations and disease processes. I'm certain this will be helpful for sharing information and for support. We count this forum as a true blessing in our lives.
Best,
Judy Dahlson |
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| | | Junior Member
Group: Administrators
Last Login: 10/25/2008 10:10:41 PM
Posts: 16, Visits: 96 |
| | Dear Judy - we are sorry to hear of the diagnosis your daughter has received. We appreciate your sharing this information. We think it is important that you have found the LGD Alliance's website, in particular the Forum. We are here for two reasons - to help you in every way we can, and to work towards finding the causes of lymphangiomatosis & Gorham's disease which we believe will lead to effective treatments. Never hesitate to call upon the Alliance for help, whether it be through postings in the Forum, private emails to info@lgdalliance.org, or to our phone number listed on the website. We will always do our best to assist. Thank your for your kind remarks. We extend our good wishes for good health to your child. Best regards. Jack. |
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