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Forum Newbie
Group: Administrators
Last Login: 12/30/2008 7:09:17 AM
Posts: 8, Visits: 59 |
| Claire's doctors are currently investigating which medications to start her on to help with bone involvement. I was wondering which medications have worked or not worked for you? We are looking for a medication that will slow or stop the progression and/or stop the pain.
Beth, Proud Mom of Claire!
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| | | Forum Newbie
Group: Forum Members
Last Login: 8/28/2008 11:54:48 AM
Posts: 4, Visits: 9 |
| Beth,
Katie used to have a lot of bone pains before the treatment. We tried Fosamax (liquid at 17mg/wk) for one year, and it didn't work. Her bone density z-score was at -4.1 then. I think the Zometa helped her. In January just before we stopped the treatment, her bone density z-socre was increased to -0.8. Now in the morning when she wakes up, she can get up and run. And she never complains about any pain. But I am still interested in what medicine that your doctor will choose for Clarie. Please let me know.
Thanks,
Cindy |
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