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| | | Forum Newbie
Group: Forum Members
Last Login: 12/27/2008 7:13:22 PM
Posts: 9, Visits: 42 |
| My daughter Robin was 15 years old when she was diagnosed with Lymphangiomatosis. She lost her battle 10 years later at the age of 25. When she was diagnosed, she was given 6 months to live.
I am here to share, to help, and to listen. Being a mom who had a child with Lymphangiomatosis, isn't easy. My best advice is to be there for your child. The hardest thing I had to do was remember that, though I was hurting, scared, angry, etc. It was not ME who had the disease. I know how hard it is to deal with all the uncertainity. God truly blessed me the day he brought Robin into my life. He blessed her the day HE called her home. |
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