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| | We were recently asked by a teacher how they could prepare for a child coming into their classroom with Gorham's disease. Perhaps parents and adult patients that grew up with LYM or GD could comment on this. I'm an adult now but recall very well growing up through elementary, middle and high school not being allowed to participate in gym class or sports and felt really left out. I feel there needs to be a coordinated effort between parent, teacher, doctor, and child to keep them safe but also able to live as normal of a life as possible. Jana |
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| | This year Claire's teacher decided that during gym time she would be allowed to pick a different friend each week to walk with her. The other thing that has helped is they do not walk in the gym (not safe due to flying balls, ect) they do laps in the halls. So her friends think it is cool that she gets to do this and it provides an environment away for the gym class so she does not feel left out. Claire did come home angry this week because she was not given a handout about basketball. She said she felt singled out when the teacher refused to give her one. I plan on talking to him next week at parent teacher conferences about maybe allowing her to be stat keeper or equipment manager. I will also point out not to exclude her from getting handouts which made her feel singled her out. One other suggestion for any teacher would be to really pay attention to handwashing and sanitizing. A lot of the medications that are given lower the resistance. When Claire gets a cold or virus it triggers her facial pain and almost always turns into a infection. I provide hand sanitizer and clorix wipes to the classroom. The teacher has student wipe down there desk daily and every trip to the garbage with a klenex required a squirt of hand sanitizer. The teacher last year stated it was the first year he did not get sick and noticed a large reduction of sick days by all students.
Beth, Proud Mom of Claire!
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Last Login: 10/25/2008 10:10:41 PM
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| There is a good explanation at the link below from the Department of Infectious Diseases, The Mayo Clinic, on the best ways to protect against germs. It is recommended to read the full article. Here is a clip from the article - "Not all hand sanitizers are created equal, though. Some "waterless" hand sanitizers don't contain alcohol. Use only the alcohol-based products. The CDC recommends choosing products that contain at least 60 percent alcohol."
Here is the link:
http://www.mayoclinic.com/health/hand-washing/HQ00407 |
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| For Zachary - sometimes too much activity brings on a painful headache - which sends him home from school. He has gym class every day and two recesses (he is in second grade), and some days, this is too much running around. I spoke with the school staff and the school therapist for a solution. The therapist sat down with Zac and they created a list of other activities that he can choose to do instead of taking a recess if he feels tired or has a headache already. The list includes such things as helping the school office make copies, helping the librarian, playing a computer game in the library, helping the school nurse with a task, reading a book, etc. Each area has a few things that Zac can do for them if he chooses that. Again - he likes that only he gets to do these things & the other kids think that it is pretty cool he gets to help out.
I love the idea of taking walks versus gym class - thanks so much - I am going to discuss that with the school!
Sandy |
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