Finding a Physician
Living with rare diseases such as lymphangiomatosis and Gorham's disease can be both physically and emotionally trying. It often impacts every area of a person and their family's life, and learning to live with it can be a difficult adjustment. The process of diagnosis and treatment can be described as a roller coaster of a journey with many obstacles to cross. The LGD Alliance strives to improve our patient's quality of life by providing valuable resources, a venue where they can meet others with similar needs and experiences, ask questions, and locate physicians.
Are you having trouble finding a doctor in your area? Please contact our Director of Patient Support, Jana Sheets at support@lgdalliance.org. She will be happy to help you with this information. Though there are no current centers or hospitals that specialize in lymphangiomatosis or Gorham's disease, the LGD Alliance has compiled a list of over 75 physicians that have experience treating patients with different aspects of these diseases. Specialties include orthopedic surgery, pulmonology, oncology, thoracic surgery, maxillofacial surgery, endocrinology and many others.
Disclaimer: The LGD Alliance provides this physician information to families as a resource. It is not intended to engage in the practice of medicine. Our Doctor Directory is provided for use by the general patient population as a quick reference. We do not recommend or endorse any particular doctor, treating facility, or treatment protocol. This directory is not intended as a tool for verifying the credentials, qualifications, or abilities of any physician contained therein. Inclusion in the directory does not imply recommendation or endorsement, nor does omission from the directory imply disapproval. In all cases, the LGD Alliance strongly recommends that you seek the opinion of a physician.