April 20, 2009

Rare Bone Disease Patient Network (RBDPN) Publishes Report of First-Ever Rare Bone Diseases Scientific Conference.

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April 20, 2009

LGD Alliance President Named Co-Chair of Rare Bone Disease Patient Network.

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February 3, 2009

Rare Disease Day - February 28, 2009

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January 13, 2009

Lymphangiomatosis & Gorham's Disease Alliance Board Member, Sonia J. Herbert-Brande Dies

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April 28, 2008

Lymphangiomatosis & Gorham's Disease Alliance receives IRS Department of Treasury Certification Letter for 501 (c)(3) status

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