FOUNDATION EXPRESSES DEEP GRATITUDE TO WORLDWIDE LYMPHANGIOMATOSIS & GORHAM'S DISEASE COMMUNITY AND FRIENDS
1/31/2010

We wish to express, most sincerely, our deepest appreciation to all those throughout the world who sent us letters, notes, cards, and emails, and personal calls to convey their support and condolences on the passing of our Founder, Jana Kelly Sheets.  And, we are so grateful for the special gifts made to the LGD Alliance honoring the life and work of our courageous, indefatigable leader who dedicated the last 5 years of her life to bringing brightness where there was darkness. 

The outpouring of support to Jana's family has been overwhelming - and for all of the family I extend our deepest thanks.  We never realized how widespread the impact was that Jana had on people's lives around the globe.   We all miss her so very much - especially her gentleness.

At this time we wish to assure the worldwide community that the Patient Support Program at the LGD Alliance continues -  and that we are fully committed to providing the same high level of support to the L/GD patients and families who seek assistance and information about lymphangiomatosis and Gorham's disease, or help in finding expertise.  We have named a new Director of Patient Support and will be announcing the formal appointment next week, along with other very important news.

New patient inquiries can continue to be sent to support@lgdalliance.org.  For all other matters please contact us at info@lgdalliance.org.

With our deepest gratitude,
Jack Kelly


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