Welcome

The Lymphangiomatosis & Gorham's Disease Alliance is a 501(c)(3) nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by the rare lymphatic malformations known as lymphangiomatosis and Gorham's disease. Thank you for visiting our website. Our goal is to provide relevant and useful information to help you become more knowledgeable about these diseases.

If there is a particular subject you are trying to find information about, and you cannot find it, please send us an email and we will do our best to help. Our email address is
info@lgdalliance.org.

News and Announcements

4/21/2009
LGD Alliance Receives $30,000 Anonymous Gift!
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4/20/2009
Rare Bone Disease Patient Network (RBDPN) Publishes Report of First-Ever Rare Bone Diseases Scientific Conference.
Full Story

4/20/2009
LGD Alliance President Named Co-Chair of Rare Bone Disease Patient Network.
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2/03/2009
Rare Disease Day - February 28, 2009
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1/13/2009
Lymphangiomatosis & Gorham's Disease Alliance Board Member, Sonia J. Herbert-Brande Dies
Full Story

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Feature Marcus Veng Petersen Honoring...