Volunteer
The LGD Alliance is always looking for ambitious people willing to give their time and talents to further our goals of giving hope and finding a cure! The LGD Alliance has many opportunities for involvement to best suit your schedule. If you are interested in joining our team, please contact us at getinvolved@lgdalliance.org to discuss your talents and we will happily put them to use!!! Also, please refer to the “Current Needs” list below for areas that we are urgently seeking support.
Current Needs
Medical Liaison – Help recruit of doctors with experience treating patients with lymphangiomatosis and Gorham’s disease to add to our “Doctor’s Around the World” list, assist with a patient registry, write content for our website and newsletter, and other assorted responsibilities. Medical background is preferred.
Web design – Assist our website designer with additions and periodical updates to website.
Journalist – Assist in the creation of an LGD Alliance newsletter and work with the web designer to keep the News & Features section of the website fresh.
Administrative/Computer Help – There are too many opportunities to list in this area!! Some examples are assisting with mailings, creating a newsletter, patient communications, creating/editing brochure and other published material, etc.
Media Coordinator - Write sample letters for contacting different media outlets, organize focused efforts to approach specific television dramas, talk shows, and other shows that could potentially feature one of these rare conditions. Contact local and national media with LGD Alliance updates, guide patients in contacting their own local media to get their own stories published.