Board of Directors
John F. Kelly, President LGD Alliance
Jack Kelly is the father of LGDA founder Jana K. Sheets, who died in January 2010 at age 35 from complications of systemic lymphangiomatosis. He is married, has another daughter, and 2 step-children.
Jack is retired from the computer industry. He attended St. Peter’s College, and holds an MBA from Pace University. He is a former member of the Board of Directors of the Lymphatic Research Foundation in NY.
Titta Anttila
Titta Anttila is a mom of three from the town of Oulu in Northern Finland, where she lives with her husband and their three children. Their daughter was diagnosed with lymphangiomatosis at the age of five. As for many patients, the route to diagnosis was long and demanding. She holds a Masters degree in Environmental Engineering from the University of Oulu and is currently at work on her doctoral thesis. She works part-time for Pöyry Finland in its Water and Environment sector as a Design Manager. Titta holds the position of President of the Executive Committee of the LGDA-Europe and was instrumental in its creation.
Allan Gammon
Allan (familiarly known as “Gammie”) Gammon resides in the countryside in Wellington, New Zealand with his wife, Valerie, and their two teenage children, Jack and Malindi. Their son Jack was diagnosed Gorham’s disease at the age of 16.
“Gammie” holds an HNC (Higher National Certificate of Engineering) from Canterbury College, Kent, England, and a diploma in Business Management from the N.Z. Institute of Management. Since 2001, he has been British Petroleum’s (BP) Innovation Manager, with a responsibility for a changing portfolio of diverse projects ranging from business strategy to long-term energy options including fuelcard technology, development of liquefied natural gas (LNG) & biofuels, and carbon trading and climate change. Gammie has been a Special Advisor to the Ministry for Environment, and is presently the BP representative on the Business Council for Sustainable Development.
Scott Goldfarb
Scott and his wife Sandy have a son who was diagnosed with Gorham’s disease at the age of three, and one other child.
Lisa K. Klepper, RN
Lisa holds a Bachelor of Science in Nursing from Northwestern State University College of Nursing. Her clinical background includes medical-surgical and critical care nursing and hospice nursing and administration. She and her husband Charles married in 2004; she has two sons and two daughters from a previous marriage, one step-daughter, and two grandchildren. The younger of her two daughters, Brittany, died in September 2009 from pulmonary complications of systemic lymphangiomatosis at the age of 19.
Scot A. Wiesner
Scot was diagnosed with both Gorham’s disease and lymphangiomatosis at age one. He now works as a special features representative for a publishing company in Wisconsin, and is the proprietor of a company engaged in air & water quality products.
Scot has been active in his community as an officer of the Lions Club, as well as other organizations. He holds an AD in Marketing from Moraine Park Technical College and is currently working towards a degree in engineering.





