About the Alliance
Our Mission
The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham’s disease by promoting research that will identify effective treatments and ultimately a cure for these diseases. The Alliance is committed to providing support to members of the patient community and their families; education for the community, professionals, and the general public; and hope to those affected by these rare lymphatic malformations.
Goals
- Provide opportunities for research in clinical and basic science aspects for lymphangiomatosis and Gorham’s disease.
- Educate medical professionals to better understand lymphangiomatosis and Gorham’s disease.
- Educate patients and family members about lymphangiomatosis and Gorham’s disease by providing workshops and literature, and other resources to better understand the disease. Assist patients and their family members by providing general support, a directory of doctors, and an online patient forum.
- Increase public awareness and distribute comprehensive information about these diseases to patients, the medical community, the public, and the media.
- Promote and support public policies that address research and healthcare needs of the lymphatic malformation community, with particular focus on lymphangiomatosis and Gorham’s disease.
- Identify and attract individuals, corporations and foundations, and granting agencies interested in financially supporting research, patient programs, and the website for lymphangiomatosis and Gorham’s disease.
Board of Directors
Medical Advisory Council
Web Site Policies
