News

Secret

Through our news page we keep you up-to-date on the activities of the LGDA, as well as news and events of interest to our community. You also will find links to our blog and our archived e-newsletters.  

Education

Desk in classroom

Education is the thread that links all the goals of the LGDA and is at the core of our mission to improve patient care by promoting research that will identify effective treatments and a cure for these diseases. Our mission centers on educating patients and their families, the professionals involved in their diagnosis and treatment, […]

Ways to Give

Hands of unity

Volunteers and private donations are the life-blood of the LGDA. Everything we do and every dollar raised to do those things is made possible by the efforts of generous individuals who believe in our mission. There are many things you can do to help support the mission of the LGDA.

Coming Events

  • Sat
    26
    Apr
    2014
    Balmoral Castle - Scotland
  • Fri
    13
    Jun
    2014
    Sat
    14
    Jun
    2014
    First Meeting Begins@ 1:00 PMSheraton Suites Market Center - Dallas, Texas

    Details

    The very first Lymphangiomatosis & Gorham’s Disease Alliance Patient & Family Conference to be held on June 13-14, 2014, at the Sheraton Suites Market Center in Dallas, Texas. Planning is well underway for this exciting conference that you won’t want to miss! This will be a very exciting and informative event for our community.Skyline2

Previous Events

  • Bethesda 2013 feature

    Meeting Report

    1st International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome The Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are pleased to share the publication of the Conference Report on the Proceedings of the First International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome. The conference was hosted by […]

  • RunBalmoralAlfie'sSchoolFriends-small

    On your marks, get set, go . . .

    200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust   On 27th of April 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.  Following last year’s success when over 60 runners took part in the Balmoral road races (www.runbalmoral.co.uk,) in support […]

  • DSC_0661_compressed

    Golf Outing Raises $41,000+

    Organizers of 2nd Annual LGDA Golf Outing: Support ‘humbling’ to help cure 2 of world’s rarest diseases   BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but even the organizers never […]