News

Secret

Through our news page we keep you up-to-date on the activities of the LGDA, as well as news and events of interest to our community. You also will find links to our blog and our archived e-newsletters.  

Education

Desk in classroom

Education is the thread that links all the goals of the LGDA and is at the core of our mission to improve patient care by promoting research that will identify effective treatments and a cure for these diseases. Our mission centers on educating patients and their families, the professionals involved in their diagnosis and treatment, [...]

Ways to Give

Hands of unity

Volunteers and private donations are the life-blood of the LGDA. Everything we do and every dollar raised to do those things is made possible by the efforts of generous individuals who believe in our mission. There are many things you can do to help support the mission of the LGDA.

Coming Events

Jun
6
Thu
1st International Conference on Generalized Lymphatic Anomaly and Gorham-Stout Syndrome
Jun 6 – Jun 7 all-day

Previous Events

  • Cake with Single Candle

    LGDA 5th Anniversary

    The Lymphangiomatosis & Gorham’s Disease Alliance is pleased to commemorate the recent 5th-Year milestone of its founding by Jana K. Sheets. Jana had a dream in two parts: one, to build an organization of people who would support one another in their journeys with lymphangiomatosis and Gorham’s disease; and, two, to promote awareness about these [...]

  • DSC_0661

    Golf Outing Raises $41,000+

    Organizers of 2nd Annual LGDA Golf Outing: Support ‘humbling’ to help cure 2 of world’s rarest diseases   BROWN DEER, Wis. (LGDA News) – The second annual Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) Golf Outing was already deemed a success before the first ball was even put on a tee, but even the organizers never [...]

CaringBridge.org   American Thoracic Society National Organization for Rare Disorders
LGD Alliance - Europe

Contact Us

Need more Information? The LGD Alliance welcomes any questions or comments you might have. We look forward to talking with you.

Lymphangiomatosis & Gorham's Disease Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (561) 441-9766

Email: info@lgdalliance.org
Patient Support: support@lgdalliance.org