Through our news page we keep you up-to-date on the activities of the LGDA, as well as news and events of interest to our community. You also will find links to our blog and our archived e-newsletters.  


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Education is the thread that links all the goals of the LGDA and is at the core of our mission to improve patient care by promoting research that will identify effective treatments and a cure for these diseases. Our mission centers on educating patients and their families, the professionals involved in their diagnosis and treatment, […]

Ways to Give

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Volunteers and private donations are the life-blood of the LGDA. Everything we do and every dollar raised to do those things is made possible by the efforts of generous individuals who believe in our mission. There are many things you can do to help support the mission of the LGDA.

Previous Events

  • ATS-PAR 2014 Feature slide

    Webinar: Pulmonary Complications of Lymphangiomatosis & Gorham’s

    Update: If you missed the webinar on August 28, it is available for viewing on the ATS website.   August 24 – 30, 2014 For the third consecutive year, Lymphangiomatosis and Gorham’s disease are being featured as part of Rare Lung Disease Week at the ATS. The feature of the week occurs on Thursday, August […]

  • Bethesda 2013 feature

    Meeting Report

    1st International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome The Lymphangiomatosis and Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are pleased to share the publication of the Conference Report on the Proceedings of the First International Conference on Generalized Lymphatic Anomaly (lymphangiomatosis) and Gorham-Stout Syndrome. The conference was hosted by […]

  • RunBalmoralAlfie'sSchoolFriends-small

    On your marks, get set, go . . .

    200 people Run Balmoral to raise money for The Alfie Milne Lymphangiomatosis Trust   On 27th of April 2013, Mum Tracy, Dad Mark and Big Brother Lewis put their trainers back on to run for Alfie’s Trust.  Following last year’s success when over 60 runners took part in the Balmoral road races (,) in support […]

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Support Information

LGD Alliance is here to help you find resources and to provide support to patients and families living with lymphangiomatosis & Gorham's disease. If you need help, please

Contact Us

LGD Allliance
19919 Villa Lante Place
Boca Raton, FL 33434
Phone: (561) 441-9766

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